Resources for those living with LBD, caregivers, and healthcare professionals.
Lewy Body Dementia Association
The Lewy Body Dementia Association (LBDA) is dedicated to raising awareness of the Lewy body dementias (LBD), supporting people with LBD, their families and caregivers, and promoting scientific advances.
Diamond Lewy Toolkit
A comprehensive overview of the management of the complex symptoms of Lewy body dementia: sleep, cognition, psychiatric symptoms, autonomic features and motor symptoms.
Search for Minnesota Lewy Body Disease Family Support Services
The LBDA.org website lists a number of local support groups that meet virtually and in person.
LBD Research
Resources on ongoing clinical trials, on finding a trial to participate in, and other research news.
Lewy Digest
Sign up to receive up-to-the-minute information about LBD clinical and research advances and educational resources.
Lewy Body Dementia Resource Center
The Lewy Body Dementia Resource Center (LBDRC) provides resources and assistance to those with Lewy body dementia and their care partners, promotes awareness of LBD, and advocates for increased funding and research for scientific advances and research.
Lewy Body Video Series
This Lewy Body Dementia Resource Center video series presents firsthand experiences of people living with LBD, their caregivers, and expert physicians.
National Institute on Aging Lewy Body Dementia
Practical tips for caregivers.
The Lewy Body Society
The only charity in the UK, and the first in Europe, dedicated exclusively to Lewy body dementia.
Lewy body dementia two-part podcast
Whether you are someone who has recently received a diagnosis of Lewy body dementia or a friend or family member, this podcast is a valuable resource for anyone looking to find out more about the disease.
The Minnesota LBD Caregiver Support Group
The Twin Cities Support Group for Persons with Lewy Body Dementia.
Email or call Paula Rice Biever for further information and to be placed on the email list for meeting announcements for either group.
Rice Biever
LBD Association Volunteer, Lewy Help Line, MN LBD Caregiver Support Group
Home phone: 651-641-0130
Cell phone: 651-308-9003
Email: [email protected]
This podcast series was created to help care partners, family and friends understand and navigate the often complex and unpredictable Lewy Body Dementia (LBD) journey. Hear real people with real experience and real insight share essential information for caring and coping.
